Patient Resources and Support

Welcome to the Patient Resources and Support section. Here, you will find important information and tools to help you navigate your healthcare journey. In this section, you can also find details on past and upcoming patient meetings, including summaries and a wide range of documentation, to help you stay informed. We also provide links to patient organizations for community support and offer information on certified reference centers for expert care.

Patient Organizations
Reference Centers
Materials

JOin our free
webinars !

Register for the next webinar on November 12th, 4 PM CET focussing Gla proteins, by Catherine Shanahan.